A Pilot Project Exploring the Impact of Whole Genome Sequencing in Healthcare
A Pilot Project Exploring the Impact of Whole Genome Sequencing in Healthcare
NCT ID: NCT01736566 Phase: NA Status: COMPLETED Enrollment: 213 Completion: 2021-01-02
Conditions
Healthy Adults (Full Study and Extension Phase), Hypertrophic Cardiomyopathy or Dilated Cardiomyopathy
Interventions
Family History + Whole Genome Sequencing, Family History Only
Summary
The MedSeq™ Project seeks to explore the impact of incorporating information from a patient's whole genome sequence into the practice of clinical medicine. In the extension phase of MedSeq we are attempting increase our participant diversity by increasing targeted enrollment of African/African American patient participants.
Primary Outcome
Change in Attitudes and Trust